Delegate of the Spanish Federation for Rare Diseases (FEDER) in Catalonia, member of the Board of Directors of FEDER Spain and Head of Training and Research of FEDER and FEDER Foundation for Research.
Father affected by Sanfilippo Syndrome type A (Mucopolysaccharidosis III A), and Founder and Director of the Sanfilippo Spanish Association in 2003, MPS Spain in 2005 and MPS-Lisosomales in 2015. In addition, he is the Director of Protocol and Institutional Relations at the University of Barcelona, Technical specialist in Computer Management and Patient Expert in different national and international committees and advisor of a variety of biotechnological companies and patient associations. He is a member and advisor of the Ibero-American Society of Medicine, as well as the Committee of Clinical Genetics of the Hospital Germans Trias i Pujol of Badalona (Barcelona). Member of EUCERD, the Commission of the IPT's of the Spanish Medicines Agency and the UEC's (Unitats d'Expertesa Clínica) Commission of the Department of Health of the Generalitat de Catalunya.